Morning everyone! Corey had an ok day yesterday. It was discovered by the day nurse that his IV that infuses his Versed had come out and they were not exactly sure how long it had been out. This could have been the reason for the seizures over the past day or so. They reinserted it and he was seizure free the entire night! Courtney told me that I was not allowed any more sleep over/slumber parties with him because he now has his days and nights confused - well, little does she know, it will be happening again! Can't wait for him to be able to wear PJ's so we can have a PJ party!

I am attaching a picture of him from the hospital. I thought really long and hard about it, but I would like to show everyone his progress from week to week. In this picture I tried to capture the smile that I got when I walked in the room that day. It really melted my heart.

Good morning everyone. Corey and I had another sleep over last night, although Mimi scolded us and gave us a 10:00pm curfew! Well, we might have slipped a little bit, but for the most part we got some sleep. Mom was home with a stomach bug and was still banned from the hospital. She did arrive this morning as I left for work and is feeling much better. Cousin Anthony from Georgia has been in for a couple of days and it has been a blessing to have him here.

It was confirmed that he had several small seizures on Tuesday night and a few through out the day on Wednesday. None of them lasted very long, which we are thankful for. I observed at least two clinical seizures (body movement and reaction) last night, but again we have to wait for Dr. Perry to let us know for sure.

He has started teeteeing on his own now and that is another step forward for him. No more caths and one less thing to make him uncomfortable.

His movement and eye contact appears to be getting stronger each and every day. Yesterday Mimi and I missed each other by approximately 10 minutes at the hospital so he was alone for that short period of time, but when I walked in and spoke to him, his little face lit up with a half smile and my heart just melted.

He is such a precious child and it aches my body to see him going through this, but I know who is in control here and I just ask that everyone please keep him in your prayers. Love you all!

I know.... day two of Corey's blog and I'm already behind! Corey and Gamma had a sleep over at the hospital last night and it turned in to more of an "over" than sleep! No worries here, we talked all night - well at least I did and he listened. He had a great night with what I think was seizure free. We won't really know until Dr. Perry arrives and gives us the scoop. Mom is home today with a stomach issue and so she is banned from the hospital until further notice- lol. Mimi is spending the day with him today and they were having fun with bath time when I left this morning.

Currently they are leaving his Pentabarb at 1.0 and hoping that the Keto Diet will help control the seizures. If that works, then we should be able to wean completely from the Pentabarb and then start working on weaning the Versed.

We know there are going to be bumps in the long road ahead, but we are here to encourage him and fight for him any way possible. I am very thankful to everyone who is keeping him on their prayer list. We have a great social network of friends and family and I am thankful for each and every one of you.

I always say that things happen for a reason. What this reason is yet is still to be determined. But what I do know is that it has brought this family a lot closer together and for that I am very happy. A lot of people don't understand the relationship between Mimi and Gamma, but we do and that is all that really matters. Liz has been a great Mimi considering she inherited Corey through marriage. I am blessed every day to have her and I know Corey is blessed more than anyone. I just want to personally thank her for giving up her time at home and her time away from Bailey to be such an inspiration and true fighter for Corey. We love her!

In the beginning........ yes, I borrowerd that line from one of the best written books known to man. It starts with the life of my little man, Corey. Corey is my grandbaby, born March 31, 2006 to my daughter Courtney. Corey has always been a very vibrant, happy, joyous & healthy baby up until he began having seizures one day without any warning. We have been at Cook's Childrens Hospital in Fort Worth for the past five weeks and we still do not have a diagnosis. In the beginning.....(see I knew I would use that line again) we arrived at Cook's at 10:00pm on a Wednesday night. By 3:30am Thursday morning he began to have a seizure. They perfomed a spinal tap and a catscan to assess the situation and try and find what was causing this to happen to his little body. By 6:00am he had a very strong seizure that lasted approximately 13 minutes. At this time they had to give him meds to stop the seizures that also stopped his breathing. That lead to us having to put him on the respirator. He was eventually coma induced to allow his brain to rest and avoid further damage. He was on two coma inducing meds along with two seizure controlling meds. As of last Friday, they have started lowering the Pentabarb (coma med) in hopes that he will wake up somewhat and be seizure free. Since Friday, he has made great progress in waking up and has start moving his body a little. As of yesterday, his eyes were fully open and his body movements were very strong. That brought great hope to our hearts as it was the first time we had seen his eyes or any body movement for 4-1/2 weeks. As with any illiness there will be bumps in the road - we encountered one of many at 11:30 last night. Corey began to have small seizures again. Rather than up his meds again, we have opted to try the Ketogenic Diet which works in most kids to control their seizures. We still have a lot to learn about this diet, but with all the diets I've tried in my 42 years, it will be a piece of cake (not literally)! We have been on an emotional roller coaster of not knowing where he may or may not progress. The doctors always tell you the worst and you always hope for the best.

I will continue to use his blog to provide daily updates on his recovery and I hope you visit the blog often.

Thanks to each and everyone of you that have offered up prayers and are continuing to pray - he is definately a precious child and we love him very much!