Corey's seizures seem to be coming a little more frequent. They have upped his Pentabarb to 2.0 which is discouraging. We had hoped the Keto Diet would have kicked in by now and we could start lowering it again. The plan is to leave it a 2.0 until end of week when the diet has been in affect for a complete week. Hopefully then we can start cutting back on the Pentabarb again.
Gamma is staying over tonight and Tuesday night - I'm so excited. I didn't get up there this weekend because I had Mason and I wanted to spend some time with him. He's a strong little boy, but he's had to spend a lot of time away from me and I tried to focus my time on him this weekend. He was the man of the house this weekend and helped me with all the chores that have gotten behind. I am very proud of him for understanding and giving up so much of his time for Corey.
Please keep Corey in your prayers that this illness will leave his body and he will be whole again. I don't expect the Corey we had, but I expect that smile and those big brown eyes for many years to come. We love him!
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Reflections on Kendall’s Kindergarten Year
10 years ago
Although we have never met, I keep my friends at work updated and we are all praying for Corey, you and your family. Thank you for letting me be a part of your world, with your pictures and updates.
ReplyDeleteSincerely,
Rebecca
Wish the seizures would stop. In our experience though, we took several steps back before forward...so don't lose hope. ( I know you're not!)
ReplyDeleteAnd that Mason. He is a VERY special boy. I'm not surprised he's stepping up as the man of the house. I've always loved him...he's always soooo polite and sweet.
Prayers continue!!