I realize that on the sea of life I can't control the weather, but I can adjust my sails



Thursday, March 4, 2010

Where to begin....... They have removed his Pentabarb today and will start lowering his Versed tomorrow with a small additive of Ativan to keep him from having withdrawals. They have also removed him from the EEG and will no longer track his seizures. It sounds like we are giving up, but the truth is, Corey cannot continue to live in a coma. We have to start weaning him from the coma meds to see how much damage has been done and how bad his seizures really are. We will attempt, I assume late next week, at removing his breathing tube. The doctors seemed very positive that he will continue to breath on his own, but the concern will be him controlling his secretions (saliva, coughing, etc.). Courtney, has had to make some very serious decisions in reference to what sort of intervention she would like from the doctors once the tube is removed.

This is a very hard decision for anyone, and a decision we should never have to make for our children. I just want everyone to know where she stands as I don't wan't people judging her and her decisions. Assuming this baby breaths on his own and controls his secretions, we will continue to love and care for him unconditionally no matter what state his brain is in. If he chooses not to breath on his own or cannot maintain his secretions and it appears that his quality of life will be limited or nothing at all, we will not interfere with what they are calling a "natural death". This child has been through a lot and should he continue to fight, we will fight with him. If he decides he's tired and doesn't have the strength to support his condition, we will let him go be with GOD and be the Angel that GOD intended him to be.

I've posted a couple of pictures of him without his EEG leads. What a beautiful baby!

I ask that each of you continue to pray for him.

4 comments:

  1. I love you Courtney!!! Just keep following your heart....

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  2. My thoughts and prayers are with you and your family.

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  3. We are all praying so hard for Corey and your family during this very difficult time....xoxoxo

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  4. Tammie: My friend (Theresa) works with your neighbor Iris. We are praying for precious Corey and the family. The prayer ministry of our church would like to help in anyway we can. If you need someone to pray with you, please call 214 728-9314, my name is Linda.

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