I realize that on the sea of life I can't control the weather, but I can adjust my sails



Wednesday, March 3, 2010

Do you ever ask at what point in your life you start watching infomercials? Well, mine started at about 3:00 this morning. Gotta tell ya, very cool stuff! Would like to have the Shark Steamer and the Ninja dicer, mixer, snow maker! Yes, I am sleep deprived and delirious at this point, but really, you should watch it at some point in your life!

Corey and I had a great night last night. As far as I know we were seizure free the entire night! Yeah!! I've posted a couple of new pictures of him. They don't really do him justice as far as everyone getting to see him move around and make his funny facial expressions. Mimi captured the picture of him crossing his legs. This is something he did in the very beginning and when she sent me this picture yesterday it made me smile. It gives us hope that he is progressing slowly back to the Corey we all know. Sometimes I feel like we are the only ones that believe this, as we only get negative feedback from the doctors. I will continue to feel this way no matter what they tell me because at this point they have no idea what is causing this or what his condition is going to be from one day to the next.

He gets CPT every 4 hours which is where they strap a vest on to his chest and shake him up for 10 minutes. This really sets him off and he lets the RT know that he is not in any way happy with this procedure. He makes faces and frails his arms and legs around to let them know that he would much rather them take his temp!! When we take the rails down on the bed he throws his legs over and tries to escape! Love it!

My cousin Terry in Georgia sent me the following prayer. It is a wonderful prayer that touches my heart and expresses the wants and needs that I would like for my little Corey. I hope that you take the time to read it and believe it in your heart.

Lord, we love you and you know we love Corey. We know God you are the miracle worker. We know you hear us when we pray. We have seen Corey in his sickness. We know many things have been tried, and he is still with us. God we ask you to look into his life and his future. You know what lies ahead. Lord heal him Your way, Your will and Your time. Guide us in making whatever decisions are best for him. Lord please don't let him suffer. He is your child, Lord. You gave him to us, and we are so thankful for every day, every minute an second that goes by. Lord after all these words, we simply ask Lord, for your will to be done. Let our hearts be prepared to accept your will. May we find peace and comfort in knowing Lord, you will not let him suffer. Thank you for his smile, we will remember always. Amen.

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